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Overcoming Spasmodic Dysphonia
A non drug voice rehabilitation model

4 day Voice Rehab Intensive: August 2005

Post clinic pictures:


Left to right: Mike, Jay, Bonnie, Brenda, Sarah, Connie

 
Mike measuring Brenda's breathing volume


Bonnie testing her vocal frequencies


Connie working with Sarah


Mike showing Jay how to work with the strap

Click here to listen to their before and after voices

Overview by Connie Pike, M.A., CCC-SLP

August 18-21, 2005 - We held our first intensive voice rehabilitation clinic in Tampa, Florida. Connie organized the clinic format based on the model she used to restore her own voice over the past year (AD/SD) and outlined in her book Free to Speak: Overcoming Spasmodic Dysphonia. She was assisted by Michael White, Optimal Breathing Specialist. Robbie Goss, licensed mental health practitioner, consulted with each participant as well. We had five participants for the first clinic; one Adductor, one Mixed with secondary dysfluency, and three Abductor. Length of time from diagnosis ranged from 6 months to 12 years.

Intensive sums up the experience well. The first day consisted of individual assessments, including breathing analysis with Mike, Connie performing computerized acoustic analysis to determine habitual pitch levels, voice evaluation and beginning video tapes. Robbie had provided a psycho-social evaluation tool prior to the clinic, which he discussed with each participant. The second day, the hard work began. Connie and Mike both met with each participant for an hour individually to begin unraveling the mechanical issues at hand. Voices began to free up and strategies were explored and breathing blocks removed. Each person was uniquely different in their manifestations of the SD and their reactions to it.

In addition to individual work, we also had some group training around optimal breathing release techniques, laryngeal massage, and singing exercises. Each person was trained on a computer program which helped them visually identify their pitch level, and provided immediate auditory feedback of speaking samples. During times that they were not in a treatment session, stations were set up so that one could choose an activity of choice such as working at the computer, doing a taped relaxation exercise, reading selected stories, articles, and books, or narrating what they were learning on an audio tape. We also found that the interaction between various members of the clinic as they encouraged one another and provided feedback on their voice improvements proved invaluable.

We met as a group in the morning and evening on Saturday and Sunday to practice our best voices as we circled up and talked in a group. All five were very pleased with the increased ease in speaking in front of others and in sharing the strategies that were working for them. They were also given a choice of what to target for the last day. Some felt they needed more breathing work with Mike and some felt they wanted to work more with Connie.

There were a few highlights of the weekend that added to the camaraderie and fun which was a contrast to the intensity of our work. The first was when a delivery guy from the deli brought our lunch in. Mike and I were in sessions so one of our participants took the food. The young man asked what we were doing working on a Saturday and was told it was a voice course. When I came out to pay him, he asked, "So what kind of voices do you guys do?" to which I laughingly replied, "any kind we can".

That evening, everyone was invited to Connie's house for a social. My teenage daughter was in and out and was introduced to everyone. As she left, she asked who all those people were. I explained that they were my voice clients and that I was helping them to get their voices back like I had. She said, "Oh, well they all sound fine to me." They were pleased when I shared her comment the next day!

On Sunday, we all went to a restaurant together. Everyone ordered their own food with ease, teased the waitress, and there was non-stop chatter and laughter the entire lunch. The waitress made the comment that we certainly seemed to have a good time together. No one overhearing us would have found anything strange or different about the voices that emerged. I was so proud of the group.

Each participant left with an armful of materials and brain full of strategies and information to use, a compliance contract, and renewed hope for continued success. Each completed an evaluation, and reported anywhere from 30-75% improvement in their voices over the weekend. Here are the testimonials of some of the individual participants:

Bonnie (Mixed SD, 12 years) Connie definitely has a great understanding of SD, as well as the aspects that involve the throat and facial muscles. She is very sensitive to each person's needs, preferences, and feelings and very approachable. Mike is extremely knowledgeable about breathing mechanics and can find the natural voice in anyone. I feel quite confident that the knowledge and tools I have received will be all I need to continue building on the progress I made here at the clinic.

The Voice Clinic was just what I needed to show me that it IS possible to overcome SD, and to motivate me to begin my own journey to true recovery. The detailed and specific information I received during the clinic helped me to realize exactly where my problems lie with regards to my voice production. I learned that SD is not one simple problem, but a combination of many incorrect breathing habits and other bad habits we pick up along the way to try to compensate for our "bad" voices. Connie's consistent emotional support and encouragement were great motivators.

L.S. (AB/SD, 5 years) "Both Connie and Mike are heart-centered in their work and clearly wish for the highest good for their clients. I leave this workshop feeling greatly encouraged that the skills and insights I have gained here will, with continued practice, enable me to steadily progress toward a voice that is functional under all circumstances. Connie and Mike have created a client-centered approach that is both comprehensive and highly individualized. They bring great heart and spirit to work that is much needed in this world."

Brenda (AB/SD, 6 months) "I was drawn to this clinic because Connie had suffered from SD and knew how I felt. She understood the devastating consequences of SD. She had put to use her knowledge of speech pathology and incorporated other methods, such as relevant speaking and singing exercises to help her overcome SD. I did not come to this clinic with illusions of returning home with a healed voice in 3 ½ days. I came so Connie could teach me the techniques. I was not disappointed. Connie is very up beat and optimistic, I had no where to go but up. She helped me find my optimum pitch and showed me how to practice. I learned through Mike that good breathing is the key to maintaining the voice. I believe I have all the tools I need to strengthen and maintain my new voice, improved 70% since I arrived."

"There are no words that can adequately express my gratitude for all that you helped us accomplished...all I can say is 'thanks, from the bottom of my heart.' May God be with you.Brenda Ley, August 2005

Jay (AD/SD, 3 ½ years) "In my experience with SD, I have come to learn that breath support is crucial to maintaining an effortless voice. But it is very difficult to obtain that needed breath support when my vocal folds are tight. The Free to Speak Voice Clinic places a major focus on first freeing your breath, so that you can then produce an improved voice, and do so without effort. My voice improved 70% at the clinic."

One participant from London, England, has not returned her evaluation form to date. Her testimonial will follow.

The next Voice Intensive for SD and related disorders will be January 18-22, 2006 in Tampa. Since we have proof of significant benefit for all initial participants, we no longer consider the model simply experimental. We will continue to collect data and testimonials in order to publish the results. We are grateful for those brave participants of the original clinic. In order to fairly cover our costs and time, the cost of the next clinic will be $1800.00 plus $200.00 for materials.

Materials include three books, DVD, video-taped home program, CD, computer software program, breathing enhancement devices, and course workbook. A minimum of 28 hours of instruction is provided, including voice, breathing and psychosocial assessments.

Connie Pike, M.A., CCC-SLP
Free to Speak Voice and Speech Therapy

January 2006 Clinic

Go to www.freetospeakvoicetherapy.com/register.html to register. Credit card, check or PayPal accepted.

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The breathing improvement techniques, practices and products outlined in this publication are extremely gentle, and should, if carried out as described, be beneficial
to your overall physical and psychological health. If you have any serious medical or psychological problem, however, such as heart disease, high blood pressure,
cancer, mental illness, or recent abdominal or chest surgery, you should consult your health professional before undertaking these practices.

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